Wednesday, September 12, 2012
The next week on my ultrasound it was obvious that James' ventricles were enlarged and that he had indeed suffered the equivelent of a massive stroke. Further MRI's, ultrasounds and consults from various doctors showed how bad the damage was. James would most likely never move much, be unable to swallow well, be blind, deaf, be unable to communicate, and may have little personality to extreme irritability. Needless to say, it was an incredibly hard time.
I carried the twins until 36 weeks when my water broke on November 16th. Neither my regular OB doc, nor my high risk doc were on call that night and so I was going to have my section done by someone I had never met. When the on call doc got a hold of Dr. Draper (the high risk OB) to get a better idea of what to expect with my son, Dr. Draper (who was out of town) said that if I could wait a few hours he would drive to IMC and do my section. I don't know if I can ever express how much comfort that gave me and how grateful I was for how caring he had been to me during this mess. I don't know what I would have done without him and his wonderful tech Melissa.
I delivered both boys and although he was on the ventilator for a few minutes, he was able to come off and went to well baby nursery with me. He had seizures after a few days and ended up in the NICU anyway because the seizure meds made his so sleepy he couldn't eat. Just before Thanksgiving I was able to bury my sweet Sam and bring James home. He has spastic quadriplegic cerebral palsy, is cortically blind, eats orally and is supplemented with a G-tube feed at night, but he has the biggest personality ever. He has a wonderful sense of humor, and loves his siblings Madison, Sierra, and Jeffrey. His dad, Jeff is the best daddy ever and we are both lucky to have him.